The 700,000 RMB orphan drug price covered by medical insurance has been reduced to over 10,000 RMB.
Today is International Rare Disease Day. Rare diseases, also known as "orphan diseases," are diseases with very low incidence rates. Data shows that there are over 20 million rare disease patients in China. Currently, more and more rare disease drugs are being included in the medical insurance directory, reducing the medical burden for many families. Little Ling, who is one and a half years old, has been diagnosed with spinal muscular atrophy, a rare disease. Patients with spinal muscular atrophy need lifelong medication, and including the medication in medical insurance has greatly reduced the burden on the patients' families. A family member of the patient said, "Originally, it cost 700,000 yuan per injection, but now it is 33,000 yuan per injection with Shanghai medical insurance, with half covered by insurance, so we only have to pay over 10,000 yuan."
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